Job Summary

The primary goals of the EAA director are as follows:

®  Reach out to the medical community to educate on them on ALS and how the association can help patients that have been diagnosed.

®  Promote awareness of ALS to the general community

®  Lead advocacy efforts for the Chapter at the national and state and local levels of government

®  Work closely with National ALS staff with federal programs and legislation.

®  Serves as a staff leader and attends staff leader meetings as scheduled

®  Reports directly to President and CEO

Primary Duties and Responsibilities

Education

®  Plan, implement, and evaluate ALS educational programs and/or services to the health-care community as necessary; determined by the goals of the Education and Awareness Program.

§  Conduct in-services to nursing homes and home-health agencies.

§  Presentations to allied health-care professionals at conferences and/or symposiums.

§  Prepare educational packets and general mailings to neurologists and primary care physicians who have contact with ALS patients.

§  Additional efforts for the rural areas.

§  Exhibit at statewide conferences hosted by health-care organizations when appropriate.

§  Prepare medical newsletter for mailing twice a year – ALSource.

®  Develop, maintain and provide ALS educational materials to all staff members as requested. 

®  Develop, plan, and implement yearly educational symposium for the health-care community.

®  Conduct ROI of each presentation or exhibit.

®  Create, maintain, and manage Education budget within overall Chapter budget.

Awareness

®  Promote awareness of the disease and services/organization through:

§  Presentations to community groups and service-related organizations.

§  Awareness to minority communities.

§  Identification and participation in community health fairs when appropriate.

®  In collaboration with the national office and Chapter patient services staff, implement activities and programs for ALS Awareness month (May) and National Caregiver Month (November).

®  Coordinate and produce the chapter newsletter (ALS Update) three times a year including a yearly volunteer edition.

®  Oversee the management of the Extra Hands and Community Ambassadors programs

®  Collaborate with the Patient Services Department and the Fundraising Department as to integrating an awareness component into events and activities.

§  Third party events.

§  ALS Awareness month.

§  National Caregiver month.

§  Walk to Defeat ALS

§  Annual Golf Tournament

Advocacy

®  Coordinate public policy and advocacy efforts on the federal level as well as in Illinois and Missouri.

§  Attend Public Policy Conference and   Advocacy Day in Washington, D.C.

§  Coordinate materials and attendance by  staff, volunteers and patients

§  Implement public policy and advocacy efforts as defined by national office.

§  Reserve dates for Illinois and Missouri advocacy days (early Fall)

§  Determine state level issues in alliance with Kansas City and Chicago chapters

§  Coordinate materials and attendance by office staff, volunteers and patients

§  Work with state and federal legislators keeping them informed about ALS and issues of importance to ALS patients and caregivers

§  Research state senators and reps backgrounds

®  Develop and disseminate information and material on advocacy to interested ALS parties.

§  Letter-writing, emails and calling, contacts to appropriate legislators.

§  Advocacy alerts and updates via e-mail.

®  Responsible for responding to all advocacy requests including letters of support, testimonies

®  Attend meetings for local and state coalitions to show ALS presence on important issues (Breakthrough Coalition, COCMA-MO, COCMA-IL, Respite Coalition, End Of Life Coalition, Madison County Networking)

®  Create and maintain Chapter Advocate listings and email addresses, etc.

Other duties and Responsibilities

®  Work closely with the Vice President of Education, Awareness, and Advocacy  to staff the Education, Awareness, and Advocacy Committee with qualified and interested community volunteers and or board members.

®  Maintain budget for EA&A Department and conduct ROI for each program

®  Attend Board Meetings.

®  Represent The Association in the community at large.

®  Give leadership and training to subordinate staff to achieve objectives

®  Develops subordinates career paths and evaluates at least yearly

®  Coaches monthly subordinate staff on goal attainment

®  Monitor association web-site information as it pertains to EA&A

®  Promote ALS Association events (Walks, Golf) when appropriate

®  Other duties as assigned

Skills Required

®  Ability to communicate effectively with management, co-workers, and volunteers

®  Microsoft Office skills (Word, Excel, Access, PowerPoint, Outlook)

®  Expert knowledge of PageMaker or other program used for newspaper layout

®  Effective communication in oral and written presentations

®  Ability to learn and develop queries on DonorPro

®  Working knowledge of state and federal legislative systems

Education and Work Experience

®  College Education

®  Additional continuing education or experience in non-profit management

Working Conditions

®  Work is performed in an office environment as well as a wide range of donor locations and facilities.

®  Frequent travel to these locations is required

®  The demands of the position often exceed normal working conditions. Company workloads may require work after hours or on weekends